Patient-Centered Resources
- Rare Disease Search Engine.
- HON – List of Rare Diseases - Health on the Net Foundation
- NIH Office of Rare Diseases Research (ORDR)
- Rare Diseases: MedlinePlus
- Disease Information from NORD, National Organization for Rare Disorders, Inc.
- Genome.gov | Genetic and Rare Diseases Information Center
- Genetic Conditions / Rare Conditions Information Site
- Orphanet Journal of Rare Diseases
- Welcome to RDCRN 2.0! - Rare Clinical Disease Research Network
- Canadian Organization for Rare Disorders
- www.eurordis.org | The Voice of Rare Disease Patients in Europe
- E-Rare - ERA-Net
- Developing Products for Rare Diseases & Conditions - FDA
